We look forward to welcoming you to Portland, OR, to attend the meeting on “Translational Opportunities for the Heritable Disorders of Connective Tissue.”  The meeting is hosted by the Shriners Hospital for Children to address the research needs of affected individuals and families.  The Coalition for Heritable Disorders of Connective Tissue, the National Marfan Foundation, and the International Federation of Marfan Syndrome Organizations back the goals that we have set for the meeting.

Participants will hear the newest research developments in heritable disorders of connective tissue and will discuss opportunities and strategies to translate research into clinical practice.  With the help of participants, the organizers will prepare a summary of recommendations to guide translational research in this area over the next five years.

Please help us to advance translational research on heritable disorders of connective tissue.

Lynn Y. Sakai, Ph.D.

Hans Peter Bächinger, Ph.D.

Leena Bruckner-Tuderman, M.D., Ph.D.

Peter Byers, M.D.

Hal Dietz, M.D.

Bill Horton, M.D.